Millie update and...We NEED a cure!

Some of you may have heard that our sweet little cancer cutie, Millie, has relapsed once again.  (Millie's family was our first featured family, read Millie's story here.)  We are heartbroken for the Flamm's as they check into the hospital once again to fight for their daughters life for a third time.  They will have to live at the hospital for at least the next month while Millie receives an intense round of chemo.  We are asking for everyone to ban together in prayers, meditation, and positive thoughts for this family.  Please share her story and spread the word.  This little girl needs as many people as possible fighting with her! If you want to send a card or note to Millie and her family, please send it to us at: P.O. box 615 Farmington, Utah 84025 we will make sure it gets to Millie!

Watching my dear friends go through this for the third time, I have so many emotions and conflicting feelings.  On one hand I am so sad and terrified.  On the other hand I have this fire burning inside me.  I am angry and I want revenge.  I want revenge on the cancer that has taken so many children at far too young an age.  About 1,543 children will die from the disease each year.  This makes cancer the leading cause of death by disease among U.S. children.  We NEED better cures for these kids!  Did you know that only 15 new drugs have been approved for pediatric cancer in the last 55 years (compared to the 120 new drugs approved for adult cancers).  So why are new drugs not being developed for childhood cancer?  This article says it is because childhood cancer is not profitable to the pharmaceutical companies, kids don't vote, kids get the hand-me-downs, and their cancers are different (to name a few).  Nobody is helping these kids.  They need people fighting in their corner and standing up for them.  They cant do it themselves!

Watch this video that explains why childhood cancer needs private funding so badly:

Facts about childhood cancer:

Incidence of Childhood Cancer
  • Each year around 13,500 children are diagnosed with cancer in the US
    • One in every 330 Americans develops cancer before the age of twenty.
    • On the average, 36 children and adolescents are diagnosed with cancer everyday in the United States (around 46 per school day).
    • On the average, one in every four elementary schools has a child with cancer. The average high school has two students who are current or former cancer patients.
  • The incidence of invasive pediatric cancers is up 29% in the past 20 years.
  • The causes of most childhood cancers are unknown. At present, childhood cancer cannot be prevented.
  • Childhood cancer occurs regularly, randomly and spares no ethnic group, socioeconomic class, or geographic region. In the United States, the incidence of cancer among adolescents and young adults is increasing at a greater rate than any other age group, except those over 65 years.
Mortality associated with Childhood Cancer
  • Cancer is the leading cause of death by disease in children under the age of 15 in the United States.
  • 1 in 5 children diagnosed with cancer will die within 5-years
  • 1 in 3 children diagnosed with cancer will not live-out a normal life-span (excess mortality)
  • Some pediatric brain tumors, such as brain stem gliomas and pontine gliomas, are terminal upon diagnosis and no new protocols have been developed in 30 years.
  • Many pediatric cancers, including neuroblastoma and disseminated medulloblastoma, are terminal upon progression or recurrence.
  • The average age of death for a child with cancer is 8, causing a child to lose 69 years of expected life.
  • Childhood cancers affect more potential patient-years of life than any other cancer except breast and lung cancer.
  • Cancer kills more children than AIDs, asthma, diabetes, cystic fibrosis and congenital anomalies combined.
Long Term Health Effects of the "Cure"
  • 74% of childhood cancer survivors have chronic illnesses, and some 40% of childhood cancer survivors have severe illnesses or die from such illnesses.
  • Childhood cancer survivors are at significant risk for secondary cancers later in life.
  • Cancer treatments can affect a child’s growth, fertility, and endocrine system. Child survivors may be permanently immunologically suppressed.
  • Radiation to a child’s brain can significantly damage cognitive function, or if radiation is given at a very young age, limiting the ability to read, do basic math, tell time or even talk.
  • Physical and neurocognitive disabilities resulting from treatment may prevent childhood cancer survivors from fully participating in school, social activities and eventually work, which can cause depression and feelings of isolation.
  • Childhood cancer survivors have difficulty getting married and obtaining jobs, health and life insurance.
Funding Disparities
  • Despite these facts, childhood cancer research is vastly and consistently underfunded.
  • In 20 years the FDA has initially approved only two drugs for any childhood cancer - 1/2 of all chemotherapies used for children’s cancers are over 25 years old
  • Research and development for new drugs from pharmaceutical companies comprises 60% of funding for adult cancer drugs and close to zero for childhood cancers. However, the NCI spends 96% of its budget on adult cancers and only 4% of its budget on children’s cancers.

These are just some of the many MANY reasons that P.S. I Adore You is so serious about finding a cure for these kids.  Our favorite childhood cancer research foundation is CureSearch and we have decided that we need to raise some money for them in honor of sweet Millie Flamm.  We are teaming up with Luvalexa who has created this darling printable calendar.  We are selling them in our store for the next 5 days and 100% of the proceeds will go to CureSearch in honor of Millie!


mintradz said...

The facts shows that we as a human should help each other to fight against cancer. My dad died last year because of cancer too. :( Now, I'm helping people with cancer to be connected with each other and help them through spiritual, emotional, and financial needs.

Last month I found this woman who is a cancer survivor. She started a blog and help those people who are fighting cancer with her cancer fighting recipes and spiritual read. She owns the Themaddwomansblog, I believe she also have a Facebook fan page. You can check her out and ask for help whenever you want.

Anonymous said...

I have been following Millies story for a long time. How is she doing at this point?

Post a Comment